FIG1 In the State of the Union
address in 2004, President Bush spoke to the value of electronic health
records: "By computerizing health records, we can avoid dangerous
medical mistakes, reduce costs, and improve care." By last April he had
created the new Office of the National Coordinator for Health Information
Technology (ONCHIT). Since then, ONCHIT's coordinator, Dr. David Brailer, has
taken the lead in a 10-year project to create a national health information
network (NHIN). Such a network will enable patients and their care providers
to access their entire medical history in real time from anywhere in the
country (Psychiatric News, September 16, 2005).
This is a grand and revolutionary vision. It aims to eliminate many medical
errors due to ignorance of established clinical facts. It promises to save
money and boost productivity by eliminating much of the need for expensive
repetition of tests, assessments, history taking, and documentation. In a
digital world, where medicine has been justly criticized as the most
IT-backward sector of the economy, such an initiative is inherently
appealing.
The activities of medicine are broadly described as either cognitive or
procedural. While both rely on history to some extent, there is no doubt that
the cognitive specialties are especially dependent on an interlocked web of
clinical information, both cross-sectionally from labs and other specialities
involved in the current treatment, as well as longitudinally from previous
treatment encounters. Much of the value in what cognitive specialties provide
for patient care comes directly from the interpretation of such manifold data,
in the context of the patient's presenting situation and the status of current
evidence-based treatment guidelines. Without accurate and timely access to
such data, the clinician is either forced to recreate it, if possible, or,
even worse, guess.
In psychiatry (the preeminent cognitive specialty), history is needed to
support both accurate diagnosis and treatment decision making. Diagnosis in
psychiatry relies heavily on history, unlike some other medical specialties,
where it can now sometimes be replaced by specific tests, such as genetic
testing of patients or imaging. Likewise, evidence-based psychiatry relies
heavily on knowledge of the patient's historical response to treatment. The
very existence of a treatment algorithm, for example, assumes knowledge of the
outcomes at the previous steps in the algorithm. If the patient cannot tell
you what drug was previously tried and the outcome, how can the psychiatrist
implement the best treatment algorithm?
Sadly, there are huge and costly domains of psychiatric care in which
access to such historical information is sorely lacking. The usual obstacles
to efficient communication of data are amplified whenever we deal with
patients whose illness directly impairs their ability to provide reliable
history. Whereas most medical and surgical patients can cooperate helpfully
with history taking, many of our patients cannot: they are psychotic, manic,
delirious, demented, mentally retarded, or very young and without a
knowledgeable historian at the point of care. The need for reliable clinical
information from an external source in patients with "a broken
brain" is clear and compelling.
But to acquire such information in a timely way from our fractured care
system is a challenge. Between the lack of resources to obtain the records,
the delay in receiving them, the illegibility or sheer contentlessness of what
is finally received, and the frequently lean staffing patterns of
public-sector psychiatric clinics, it is not uncommon for no one to know the
nature of a patient's first episodes 20 years previously. One can argue that
the entire enterprise of deinstitutionalization has floundered, in part,
because of the systemwide failure to address the medical informatics conundrum
created when patients were released from state hospitals. For all their ills,
they were in hospitals with a medical record. A NHIN could breathe new life
into the vision of a "hospital without walls" to care competently
for chronically mentally ill people in the community.
Of course, many psychiatrists do not practice in the public sector and
treat populations that are both less impaired and more vigilant about their
privacy. The concerns of an executive about who might learn of his drinking or
depression are of a different nature. Contrasted to the "closed
system" of our paper-bound office, the NHIN is an "open
system," and there is an unprecedented capacity for damaging information
to travel quickly to unacceptable destinations. Even for something much less
ambitious than the NHIN, such as the popular "personal health
record," it quickly becomes evident that patients' control over the
content of such a record will be of singular importance to most people. This
is not unique to psychiatry. There are already many other kinds of medical
information carrying a high demand for privacy, such as HIV status and the
results of genetic and other diagnostic testing for debilitating or fatal
illnesses. Psychiatry can help heighten the awareness of the rest of medicine
about the need to instill patient-controlled privacy protections into the very
fabric of this brave new world of NHIN.
APA is already engaged with ONCHIT. A newly formed APA Corresponding
Committee on Electronic Health Records is publicly advocating the value of a
NHIN to enhance the care of people with chronic mental illness, while at the
same time voicing in the strongest possible terms the need for
patient-controlled privacy assurances at every nonemergent level of data
transfer. In this way, APA can join with the rest of medicine as we enter the
digital age while retaining psychiatry's historical core values for privacy
and patient rights.
John Boronow, M.D., chair of the APA Corresponding Committee on
Electronic Health Records, contributed to this column. ▪